Showing posts with label therapy. Show all posts
Showing posts with label therapy. Show all posts

Trying To Get ABA Therapy For Autism Teaching

Wednesday, June 30, 2010


I met with my son’s case manager. She is still working on getting my son a communication device. Apparently, his former case manage left things a mess. She quit and his new one is trying to fix everything. His new case manager isn’t familiar with communication devices or Boardmaker.

A couple years ago, we were able to get a touch screen and Boardmaker. His CAP services/Medicaid paid for them. The company that is responsible for approving the communication device we are trying to get, asked her why does he need it when he just got a communication device. I explained to her that he didn’t get a communication device. He received software and a touch screen that can be used on the computer. He needs a communication device that he can take anywhere.

She understood after I explained. Then I brought up ABA. I firmly believe that my son would benefit from ABA therapy. I’ve tried and tried to get it, but either there were no providers in the area or insurance wouldn’t pay. I asked her to check into it. There are providers in the area, but I don’t know if CAP or my son’s insurance will pay for it. If my son was 3 years old, I would be able to get ABA for him with no problem. Only, he’s not. He’s 11. When he was 3, he wasn’t even diagnosed ASD. He was diagnosed with “Global Delays.” Globally delayed is all we heard, until he was 5 years old. That was when he was diagnosed with Autism. Of course, the school had to be convinced. That took a lot of doing.

From everything I have read, ABA can benefit all ages. It is believed that the younger the child, the more ABA can benefit him. That is great, but please don’t forget about my son, just because he isn’t the age you think he should be to receive ABA therapy. He is still learning. His OT and I were working with him on throwing a ball the other day. His biggest problem with that is letting go of the ball. We actually got him to do that. We were so proud of him.

His case manager said she will call me Friday and let me know what she found out. I hope it’s good news and not bad. I really think he needs this.

How To Support The Artistic Development of Your Special Needs Child

Tuesday, May 25, 2010

I am often asked: "How do I support the artistic development of my disabled child now and as he grows up? What community resources are available for him?"

I believe it is very important to identify and cultivate the artistic skills and interests of children with disabilities. There are several reasons for this. First, art gives these children an opportunity to be successful. Second, art gives them a way to communicate. Third, art improves development by involving a variety of cognitive, sensory, and motor skills.

I have a few suggestions to offer about where to look for art opportunities in the community:

* Consider enrolling him with a private professional art teacher. This is better than a class as he will get one-on-one attention. However, depending on his issues, many may not be equipped to handle or address his special needs. Be sure to ask about the art teacher's specific skills.

* Consider a summer art camp. One that offers a spectrum of art experiences would be great. He can explore a variety of art mediums and decide what he likes or dislikes and what he may want more training in.

* Consider encouraging his classroom teacher to write for a grant to have an artist-in-residence. Artists-in-residence offer students an opportunity to work on a quality project over an extended period of time. These projects may be purely art or art in support of academic and/or IEP goals.

* I would encourage you to look for a high school with a strong art program.

* As your child approaches adulthood, there are many non-credit classes available in a variety of art mediums through local universities and community colleges.

Resources vary by community. You may be surprised to find a wealth of opportunities just waiting for you to tap into.

Bailey Earith is a professional fiber artist. She uses her 25 years experience as an occupational therapist to empower people with disabilities through art education. She has been published extensively for her innovative work with disabilities. She lectures and teaches classes and seminars across the country. Topics include: Special Art for Special People, How to provide art experiences to people with disabilities for parents and teachers, and Artist-in-Residencies.

Web site: http://www.BaileyFiberArt.com Visit her blog for an open discussion of art and disabilities. Blog: http://disability-art.blogspot.com/

Article Source: http://EzineArticles.com/?expert=Bailey_Earith

Good Nite Lite To Help Your Child Get To Sleep

Thursday, May 6, 2010


I was sent a Good Nite Lite to review and keep. I was excited to have the opportunity to review this product. So was my daughter. The moment she saw it, she wanted it in her room. The Good Nite Lite is a night light that shows the moon at night and the sun during the day. You get to set the time when it changes from one to the other.

I have a hard time getting my daughter to bed and getting her up in the morning. If the sun is still up, she does not want to go to bed. No matter what time it is. She also hates getting out of bed first thing in the morning. Unless, of course, it’s the weekend. She likes to get up early on the weekend, when I am supposed to be able to sleep in.

The Good Nite Lite comes with a battery in it and an extra one. You can also plug it in. I have it plugged in for my daughter. The first night that we used it, she disappeared on me. I noticed it was quiet, and it occurred to me that I hadn’t seen her in a while. I found her in bed, asleep. Her Good Nite Lite moon came on and she went to bed. The next morning, I woke her up and pointed to her Good Nite Lite. The sun was on. I walked out of the room, without saying another word. She got up and got herself ready for school.

This wasn’t just a one time thing. All week, she has been going to bed when the moon came on and she hasn’t argued with me about getting up in the morning. All I have to do is tell her that her sun is on.

If you are having trouble getting your child to understand when to go to bed and when to get up, this might be something you will want to try. It retails for $34.99 and can be purchased on the Good Nite Lite website.

Connecting With A Defeat Autism Now! Practitioner

Wednesday, May 5, 2010

I interviewed Marjie C. Andrejciw, MT (ASCP), MS, NC, Holistic Nutritional Counselor, Circle of Life Nutrition, www.circleoflifenutrition.net
She is a holistic nutritional counselor and a Defeat Autism Now! Practitioner. She regularly works with autistic children and sees positive results in her practice. She uses dietary, lifestyle, and supplement recommendations to help make a difference in these children's lives. Here are the questions and answers of my interview.


1. Can you explain to my readers what a Defeat Autism Now! Practioner is?
A Defeat Autism Now! Practitioner can be a nutritionist, MD, OD, Chiropractor, ND, NP or other practitioner that meets the minimum educational requirements as defined by Autism Research Institute (ARI) and has attended the Clinician ARI conferences. The conferences teach the biomedical approach as outlined by ARI. In order to be recognized by ARI as a Defeat Autism Now! Practitioner you must attend a conference at least every 2 years and pay a membership fee. If you are not on the list, you are not suppose to use the Defeat Autism Now! title.

2. What kind of training does a Defeat Autism Now! doctor receive?
Defeat Autism Now! Practitioners are a group of scientist, researchers, and clinicians that work together with ARI (the parents group) to bring the most updated information about the biomedical approach to the public. ARI is literally a hub of information for parents and practitioners to find out more about autism and how to treat it. www.autism.com
The conferences present the latest research on autism, goes over the latest biomedical approach, and discusses case studies. They also provide resources to help the practitioners. Vendors related to autism are available to answer questions, demonstrate their products, and give samples or demonstrations at the conferences. We also receive a regular newsletter and email updates on happenings related to autism.

3. What kind of qualifications should a parent be looking for in a Defeat Autism Now! doctor?
Diet is the cornerstone to treating autism. It is important that a parent look for a practitioner well versed in helping with the diet as well as lifestyle and supplement modifications. Lab testing is very helpful, but a practitioner needs to understand how to adjust a protocol for abnormal lab results. Also, look for a practitioner that will spend time getting to know your child and their individual needs. While there are lots of similarities between children on the spectrum, each child's needs are unique and requires a unique protocol. A good bedside manner is important. Patience and persistence is important, not all biomedical interventions work with every child, sometimes it takes trying different approaches before discovering the needs of the child. Parents need to be able to ask questions and for clarifications on recommendations. The biomedical approach is not easy. It takes time and determination by the parent as well as the child. But the rewards are worth the effort because it does work.

4. What is involved in getting your child under the treatment of a DAN! doctor? Do insurance companies cover the costs of visits and testing done with a Defeat Autism Now! doctor?
The first step is finding a practitioner that the parents feel comfortable working with. The ARI website lists practitioners. There are three categories: licensed professionals, unlicensed professionals, and nutritionist. Often times a practitioner will spend 15 min. on the phone (at no cost) with a parent to see if it will be a good fit. Many times a practitioner will offer phone consultations for clients that live a long distance away so that they do not need to travel a long distance.

Most insurance companies do not cover the costs of visits for autism. I have clients that have submitted my paid invoice and been reimbursed for the office visit through their health care spending acct. I use Metametrix Clinical Labs for my specialty lab tests, and they now submit a claim to the insurance company on the client's behalf. The parent still has to pay in advance. Often times a health care spending acct will reimburse for the costs.

The Horse Boy Touches Your Heart

Monday, May 3, 2010



PBS will be airing “Horse Boy” on Tuesday, May 11, 2010 at 10:00PM. (Check your local listing for the exact time in your time zone). This is a documentary following a family with an autistic son. I was sent an advance copy to review. Rupert Isaacson and Kristin Neff talk frankly about their son Rowan and about their feelings, hopes, dreams, disappointments and guilt. They have tried traditional and non-traditional treatments for their son, in hopes of finding a cure for him.

This documentary follows them to Mongolia, in order to combine non-tradional healing (shaman healing) and horses. Rupert is a former horse trainer, and had kept his son away from horses, for fear of him getting hurt. One day, Rowan had gotten away and wandered into the neighbors yard. There, he came face to face with the neighbor’s old mare, Betsy. The two formed a connection. Upon seeing this, Rupert was amazed at how his son changed when around this old mare.

I enjoyed watching this documentary. Both parents expressed concerns and observations about their son, and I found that I was able to relate to a lot of what they were thinking and feeling. I had one problem with the movie, and that was the description of autism by Roy Richard Grinker, Ph.D. In his description of autism, he said that individuals with autism range from the, “Severely mentally retarded who is completely nonverbal, to somebody who is a socially awkward mathematics of physics professor.” My son is nonverbal, and he is extremely intelligent. I hope that people that watch this movie will not assume that all nonverbal, autistic children are mentally challenged.

The progress that Rowan made during and after the trip to Mongolia was amazing. I don’t think it was the Shaman’s that caused the changes that occurred. I have noticed that my son makes leaps in his developmental progress after we take trips with just the three of us (when our daughter is with my parents). I think it is because he gets both my husband and myself working with him 24/7. He has our full, undivided attention. Last year, after a weekend at the beach he went from not being potty trained, to 75% potty trained. Within the next week, he became fully potty trained. That’s huge.

I did enjoy watching this family. I think a long trip in Mongolia is a bit extreme, but the idea of getting away for a long period is great. If my family could do that, we would. Instead, we settle for camping trips on the weekend. My son loves them and he gets to learn new things and, most of all, mommy and daddy are focused on him and his sister. The television, computer and household chores are not taking our attention.

I highly recommend watching this documentary. It is an open and honest representation of raising an autistic child. I felt a connection with this family, as I was watching. I think it will help some people understand what we are going through.

A Moms View of Vaccines And Therapies

Thursday, April 22, 2010

As promised, here is my second interview with Carol Greenburg.

1. What's your opinion on the question of vaccines causing autism?
There is no credible scientific evidence to support a vaccine/autism connection. I do not personally believe that vaccines cause autism. That said, if there is any event after which your child shows a fundamental and persistant change in behavior, you job as a parent is to investigate whether there might be a chain of causality. That's just good parenting. So leaving vaccines per se out of the discussion, let's say my kid was talking a mile a minute, and then he ate a pancake and hasn't said a word ever since. It's just common sense for me to want to know whatwas in that pancake, and what was going on in the restaurant, and who cooked it, and who served it. Ultimately, after a reasonable investigation of those surrounding circumstances, I would move on and stop focusing on what may or may not have caused his speech loss and focus on whatever is most likely to help him regain his speech.

2. Do you follow or have you used, any kind of special diets or nutritional supplements?
We know many people who do use special diets and supplements with varying results. That option is not as open to us as it is to some other parents, because Arren has many food aversions and is a hypertaster;so we can't just give him a gummy vitamin or slip a supplement into his juice. Back before he decided he hated orange juice and would only drink apple juice, we were able to buy an orange juice he liked that was supplemented with Omega-3, which some evidence suggests reduces inflammation in the brain. Honestly though, it's hard to tell whether Omega-3 was having a significant effect, because overall, between all of his various therapies, Arren is making steady progress. We're grateful for this, and wish we could trace what therapy is causing what improvement, but I doubt we'll ever know.

3. What kind of therapies or programs have had the most affect on your child?
I feel strongly about doing whatever works and so do his teachers,so we all work together very cooperatively. Arren attends an ABA-based school. ABA scares a lot of autistic adults, because they assume it's dehuminizingly Pavlovian, but it doesn't bother me because when its done properly, it can actually be a very flexible individual approach. Any child, autistic or not, has interests that tend to motivate or demotivate him or her. Autistic children's interests are deeper and more passionate if more unusual. So no matter what you callthe type of therapy, ABA, Floortime, or anything else, if you can capture and hang on to an autistic child's particular interest(s) some quality education will happen. Arren is a jock; he's never met a sporthe doesn't like. Whatever they want to call their method, his teachers have got to keep him moving if they want get and keep his attention.That's counter intuitive to folks who have a rigid idea of thereapy as involving a kid sitting in a cubicle doing discrete trials all day. But my kid is more likely to work on his reading hanging upside down from a rope ladder, so that's what works for him, me, and his teachers.

4. Are there any particular therapy or treatment programs that you strongly oppose trying and why?
I don't think there's any diplomatic way of saying this, or perhaps I just don't feel like trying. Chelation is ineffective, dangerous and oughta be outlawed. In general I'd say the more you subscribe to the disease/cure model the more vulnerable you make yourself to snake-oil salespeople. The less you focus on cures and the more you focus on services to address comorbid conditions, the better off you and yourchild are.

About Carol Greenburg

I am an adult with Asperger's Syndrome, the mother of a seven-year-old severely language-delayed autistic child, and executive director of a consulting company that helps parents of children with disabilities in get services for their kids. As part of a partnership with the Brooklyn Parent Center of BCID, I speak frequently at parent support groups, community-based organizations, and at universities all over Brooklyn. The motto in our home, and office is "Not sick. Not Broken. Just Neurologically Outnumbered. To find out more about me, my family and my work, please visit my company website www.bklynsnc.com, my company's Facebook page at Brooklyn Special Needs Consulting, or follow me on Twitter under the username "Aspieadvocate."

An Asperger Adult Mom With An Autistic Child Interview

Wednesday, April 21, 2010

My latest interview is with Carol Greenburg. She has the unique perspective of both an indiviual with autism and a mother of an autistic child. Here are the questions and answers from the interview. I enjoyed getting to know Carol and her child so much, that I also conducted a second interview with her on the subject of vaccines and therapies. That will be posted tomorrow.

1. As an adult with Asperge's Syndrome and a mom of an autistic child, you have a unique perspective. Do you think you understand your child better than most autism parents?

I feel I do understand my son pretty well, though I have no basis of comparison to the level of understanding between other mothers and sons. I can say that I think my own Asperger's gives me a bit of an edge in what I decide to worry about and not worry about. I often observe self-stimulatory behavior in my son that exactly mirrors the stims I used for self-calming at that age, and am therefore less likely to overreact and automatically block "odd" behaviors. I believe that moment of thought before saying "Stop it" makes for a more relaxed environment in our home. If he starts singing the same song over and over to himself, which is one of the stims I had at his age, but no longer do, I try to engage him rather than just telling him to stop, which leaves me at least feeling good that I just had a nice interaction with my son rather than frustrated that I can't make him behave in a more typical way.

2. Getting services for your child can be extremely difficult for most autism parents. What do you recommend is the first step in attaining services for your child?

As a special education lay advocate, I feel duty-bound to answer that by simply advising everyone to hire me Here's a more serious answer, though: Think rights Talk Responsibilities. The law is on your side a lot of the time, so there's a great temptation to run into every IEP meeting waving statutes and yelling about how your kid's and your rights are being violated. Maybe they are, but the point is not to express your anger, however entitled you are to it, the point is to solve the problem. That means that no matter what the school has said or done, you need to excercise enough self-control to say "I recognize that my child's education is ultimately MY responsibility, and that you have the training and expertise to help me fullfil that responsibility. You [the district, the principal, the teacher] are a valuable resource. What can I as a parent do to partner with you to get access to the wisdom that your training and experience can yeild?"

3. What kind of services/therapies do you think are an absolute necessity for an autistic child?

I'll say the same thing the law says: The child gets what the child needs. Children and their needs are completely individual and they change over time. My son and I are both on the autism spectrum: I had no speech delay. He has a severe speech delay. He needs as much speech therapy as we can get him. Speech therapy would have been a complete waste of time for me at his age; all I did was talk. But I was constantly saying the wrong things to the wrong people. What I needed was the kind of social skills intervention, he's already gotten. At only seven he's immensely popular, never been bullied, and thanks to all of the OT he's gotten, he's actually more of a jock than anyone in our family going back generations.

4. Who pays for these services? The parents, insurance, school? When should parents draw the line at paying for therapies? Do you believe that it is fair on them and the child to be bankrupt and to lose their homes in order to support therapy for their child? (I've heard from parents that think it is and those who think it isn't.)

I don't feel I could function as an advocate and say I believe parents should foot the bill for everything. First of all, that's simply impossible in most cases. I don't personally know anyone rich enough to pay for the level of service my son gets without reimbursement. However, there are times when parents, who are fighting the good fight as they should, do need to pause and ask if they're looking for money from the best possible sources. True, your child has the legal right to a free appropriate public education, which encompasses much more than most people realize. That does NOT, however, mean that your automatic response to any need should be to hold out your hand to the local school board. Medicaid and medicaid waivers are overcomplicated to get, which is probably why they're underused, but if you can get your kid into that system, it opens up a world of resources. In the end, schools are more open to the requests of parents who also look elsewhere for funding. As far as insurance is concerned, you can't count on it, but you should be able to. The total lack of coverage for autistic children is a national disgrace, so if you have any energy left over from fighting for your child's individual needs, I can't think of a better cause than autism-specific insurance reform in which to pour that energy.


About Carol Greenburg
I am an adult with Asperger's Syndrome, the mother of a seven-year-old severely language-delayed autistic child, and executive director of a consulting company that helps parents of children with disabilities in get services for their kids. As part of a partnership with the Brooklyn Parent Center of BCID, I speak frequently at parent support groups, community-based organizations, and at universities all over Brooklyn. The motto in our home, and office is "Not sick. Not Broken. Just Neurologically Outnumbered. To find out more about me, my family and my work, please visit my company website www.bklynsnc.com, my company's Facebook page at Brooklyn Special Needs Consulting, or follow me on Twitter under the username "Aspieadvocate."

What Is SPD?

Thursday, April 15, 2010

Think of your brain like a computer where information is entered. The computer (brain) processes the information and then yields output in the form of behavior or motor skills. This is the concept of Sensory Processing Disorder (SPD). The brain organizes sensory information to create an adaptive response. This processing directly impacts the development of motor control, behaviors and emotional responses. SPD occurs when there is a "glitch" in the system which disrupts daily routines.

When we think of senses, we all know the five senses of sight, hearing, taste, smell and touch, but the two lesser know senses need greater attention. The vestibular sense obtained through movement and the proprioceptive sense obtained through our joints are very important senses and are precursors to the development of our visual and auditory systems.

There are three symptom clusters under SPD. Sensory Modulation Disorder may include over-responsivity, under-responsivity and sensory seeking. Sensory Based Motor Disorder includes dyspraxia and postural disorders. Sensory Discrimination Disorder affects vision, hearing, touch, taste, small, position and movement. Each category displays a specific set of symptoms & behaviors, which I would be willing to write to at another time.

My son has Sensory Modulation Disorder. Some things he is under-responsive to, like pain. Some things he is over-responsive to like noise. Most of the time he is sensory seeking, seeking input to meet his proprioceptive and vestibular needs. He also has mild hypotonia so he may fit loosely into Sensory Based Motor Disorder. He also has issues with auditory processing and may fit into Sensory Discrimination Disorder.

In the past we have seen several Occupational Therapists who claimed they worked with SPD, but issues were never adequately addressed. Now, we have a new OT and her complete focus is directed to SPD! Details here: http://www.ourjourneythruautism.com/2010/01/we-have-new-ot-with-focus-on-spd.html

We have been involved in activities that meet his sensory seeking needs. One of the most profound activities has been therapeutic horseback riding. Great info here: http://www.ourjourneythruautism.com/2008/10/eamon-coca.html We have been riding for about 18 months and it has been incredibly successful.

We had been involved in a tumbling program as well. We had stopped because the instructor had left the program but most recently found a great drop in program where he can jump on trampolines, swing on a rope into a giant foam block pit, tumble along an obstacle course, etc. and he leaves completely satisfied, all sensory needs met. This fall we added Karate to the mix which address some of his sensory needs and also works with self discipline and self control.

For further information, I recommend the SPD Foundation and The Out of Sync Child and sensory diet ideas from The Out of Sync Child Has Fun




written by:
Tiffani Lawton, RN

http://www.OURJourneyThruAutism.com

Providing ABA Therapy For Your Child

Wednesday, April 14, 2010

ABA Therapy is one of the most recommended forms of therapy for a child with autism. I interviewed Kelley Prince, Board Certified Behavior Analyst, and asked her several questions about ABA Therapy. Here are the questions and answers:


1. Can you introduce yourself to my readers and explain what ABA therapy is?
My name is Kelley Prince. I am a Board Certified Behavior Analyst and the President of Behavioral Consulting of Tampa Bay, Inc. (http://www.bcotb.com). I graduated from the University of South Florida with a bachelor’s degree in Psychology and a master’s degree in Applied Behavior Analysis. I have been working with children with autism and related disorders for more than 11 years. Currently, I have 2 clinic locations in the Tampa Bay area that provide clinic-based, school-based and home-based behavior intervention programs for children with special needs, or for children who engage in problem behavior.

Applied Behavior Analysis (ABA) is the science of human behavior. It involves applying behavioral principles and techniques to improve socially significant behavior. ABA therapy is two-fold: interventions are used to increase behaviors that are not occurring at an appropriate rate (i.e. the individual has a skill deficit) or interventions are used to decrease behavior that is occurring too frequently (i.e. problem behavior.) ABA therapy is the only therapy with more than 30 years of research and statistics proving it’s effectiveness for children diagnosed on the autism spectrum as well as, as an intervention for a variety of populations and behaviors.

2. What can parents do if ABA therapy is not available where they live?
If ABA therapy is not available to a family in their area, they may contact an out-of-town Board Certified Behavior Analyst (BCBA) who can provide consultation, assessments, and staff training on a limited or perhaps monthly basis. Most families in this situation contact their local university to find students who are interested in receiving ABA training and who are available to work directly with their child under the supervision of a BCBA. The number of students needed depends on the number of therapy hours the child receives each week. Once students are secured, the BCBA comes to the home for 3-4 days and completes an initial assessment of the child, develops program goals and trains the private therapists. The BCBA then provides supervision and consults with the family and therapists on a weekly basis via phone calls, emails, and videos. Face-to-face consultations occur on a limited basis and involve observing the therapists implementing the program goals and instituting changes to the goals based on the child’s performance. Additional staff training may also take place depending on new goals as they are developed.

3. What about the cost of providing ABA therapy for your child?  Do you know of any grants available to parents to help cover the cost?

The overall cost of ABA therapy is dependant on the total number of hours per week the child receives the therapy. The average rate of therapy is between $40.00 and $60.00 an hour, and depending on a child’s individual needs, many are enrolled for 10 to 40 hours of therapy each week. There may also be additional costs for services provided by the therapy supervisor, or BCBA. The child’s initial assessment, the development of a child’s specific program goals as well as the monthly supervision of the therapists may be a separate, initial or on-going charge that can range from $60-$150 an hour depending on the BCBA’s experience level. Always check with the BCBA or clinic to verify any additional expenses and what they entail.

In the Tampa Bay area, funding sources such as the ASO Grant are available to offset the costs of ABA therapy. Otherwise, if a family resides in Florida, and the child is in the Medicaid Waiver program, behavioral services are, in fact, covered.

Additionally, the “Window of Opportunity Act” was passed last year by Florida Governor Charlie Crist and requires insurance companies (within the state of Florida) to cover up to $36,000 of ABA therapy for every child who has received a diagnosis on the Autism Spectrum Disorder including ASD, PDD, and Asperger’s. There are limitations and stipulations to this legislation, but it has already helped several families in our area receive ABA therapy, who otherwise may not have been able to afford such treatment, at no out-of-pocket cost to them.
 

4. Is there a cut-off age for ABA therapy?  Is there an age that introducing ABA therapy with an autistic child will not be helpful?

There is not a cut-off age for ABA therapy as it helps individuals of all ages, including older adults. However, for the most effective therapy, early intervention is key. I recommend children in need of ABA therapy begin services before the age of 5 to have the best possible outcome.
 

5. How would a parent go about finding a qualified provider of ABA therapy services?

A parent looking for a qualified provider of ABA therapy services should ask other parents who have children with autism as well as their pediatricians, neurologists or other therapy providers such as speech or occupational therapists. If parents do not have access to other parents or professionals who are familiar with local BCBA’s, their best bet would be to search online using the Behavior Analyst Certification Board Registry at www.bacb.com.

6. Can parents be trained to provide this therapy if there is no one in their area to hire?  If so, what would that involve?

Parents can be trained to provide this therapy and even if the child is presently receiving services, it may be a good idea to help supplement the child’s time at home. However, if a provider is not located within a family’s particular area, the parent should contact a qualified BCBA to discuss home therapy. The BCBA will need to travel to the home to conduct a thorough assessment and analysis of the child, create program goals suited to the child’s needs and then provide the parent training – similar to the process of a BCBA training private therapists. (See response in question 2 above)

Autism Articles Only for Autism Awareness Month

Thursday, January 21, 2010




April is Autism Awareness Month. I want to do something that will make April different on blog compared to the rest of the year. Because of this, I have decided to not do any reviews or giveaways for the month of April. This will only be for the month of April. I will continue to have them before and after April.

I have been working on articles to run during the month of April that will be autism related. These articles will cover a variety of topics: speech therapy, occupational therapy, vaccines, special diets, safety, early intervention, signs of autism, and stories from parents about raising a child with autism. These stories will be my favorite articles of the month. They show how the experience of raising an autistic child differ from family to family. They show how each child is different. They also show how much love and strength a parent can have for their child. They remind me, and I hope will remind everyone, that we are not alone.

It is also my hope that individuals that are not familiar with autism will be able to visit my site during the month of April to learn about a variety of issues. Some may be controversial. I hope to enlighten and challenge everyone on as many aspects of autism as I can. I am still looking for some parents to share their stories. If you are interested, please email me at tammy@learningfelt.com.

Learning with The Price is Right for the Nintendo DS

Saturday, December 26, 2009







My son loves The Price is Right. He has been watching the show since he was a toddler. As he got older, he started noticing the games in the stores. He discovered the television game, the computer game and the Wii game. He would insist that I buy each one until he had a complete collection of The Price is Right game types.

He would try to play them, but they would be too difficult for him to pick up quickly. When I bought him the Nintendo DS to use for his TapToTalk, he kept trying to get me to buy the Nintendo DS version of The Price is Right. I made him wait until after Christmas.

As luck would have it, he was given two of The Price is Right games. They are two different versions, 2008 and 2010. I was relieved. Buying for my son at Christmas is difficult. When family members asked me what he wanted, I always included this game on the list. Because of this, he ended up with one from my husband’s side of the family and one from my side of the family.

I am pleased to announce that he can play it on the Nintendo DS. Both my husband and I take turns sitting with him and teaching him how to play the game. In a day and a half, he has picked up on lot. He prefers the newer version better. The pricing games are a little easier for him to do.

I am extremely proud of my son. It requires a lot of skills to play this game on the Nintendo DS. It works on his eye-hand coordination and fine motor skills. Improving his skills with the stylus and selecting pictures on the little screen will help improve his communication skills when using the TapToTalk on his Nintendo DS. It is also great to watch him having so much fun doing.

Calling for Action After the CDC Reports Higher Autism Rates

Tuesday, December 22, 2009

1 in 110 children are diagnosed with autism. That is 1 percent of our children in the United States. “These results indicate an increased prevalence of identified ASDs among U.S. children aged 8 years and underscore the need to regard ASDs as an urgent public health concern. Continued monitoring is needed to document and understand changes over time, including the multiple ascertainment and potential risk factors likely to be contributing. Research is needed to ascertain the factors that put certain persons at risk, and concerted efforts are essential to provide support for persons with ASDs, their families, and communities to improve long-term outcome.” - CDC

Identifying ASD at a young age is important. Early intervention has been proved to benefit our children. Yet, “the average age of diagnosis was 53 months” - CDC. Autism Speaks is pushing for the government to finance efforts to improve this number. I feel that this is extremely important for children that have yet to be diagnosed.






The CDC also acknowledges that community services are important in order to “improve daily functioning and long-term life outcomes.” The Autism Society of America agrees with this, and is calling upon the “government to address the pressing need for community-based services to ensure a better quality of life for people with autism and their families and to increase funding for research into what factors put people at risk and treatments that will mitigate the severest medical symptoms affecting people with this chronic medical condition.” http://www.autism-society.org/site/News2?page=NewsArticle&id=15481&news_iv_ctrl=1882

Both organizations are working towards important goals. Both are doing what they can to get the government to step up and help the children of America. This is no longer a concern for the few. The statistics show that the ASD rates are increasing drastically. It is time that the government started making a real impact in this area.

A child should not have to wait until the age of 4 and 5 for a diagnosis. Appropriate therapy can not be established without an appropriate diagnosis. Parents should not have to fight for a few hours of therapy a week. Children with autism benefit more from intense therapy, like ABA or Floortime, 20 to 25 hours a week, minimum. Most parents are not able to get this for their child. Speech, Occupational and Physical Therapy are important, but they don’t address the communication and social skills issues that are key with most autistic children. Two hours a week of combined therapy in those three areas are just not enough.


It is important that we all demand that our government take action. It is not enough that Autism Speaks and Autism Society of America are rallying their resources for us. We, the people, need to make our voices heard. It is time to call and email your Representatives and demand action. Call and email every level of government and every official that represents your city and your state. It is time that they started giving us some real help.

Who Can Help My Autistic Son

Sunday, December 13, 2009

















Who can help my son? My son is ten years old. He is nonverbal. His is autistic. Who can help my son? He can not write. He needs hand over hand assistance to write letters and numbers? Who can help my son? He has a short attention span. He has difficulty following verbal instructions. Who can help my son?

He can dress himself. He is not able to bathe himself. Who can help my son? He has sensitive hearing. He doesn’t like his hands and fingers touched. Who can help my son? He is extremely intelligent and bores easily. He isn’t able to demonstrate his knowledge unless he is using hand over hand to access a communication device. Who can help my son?

He has OCD. He flips through books from back to front. He doesn’t play with toys. He wants what he wants, when he wants, and there is no reasoning with him or changing his mind. Who can help my son? He has a limited list of acceptable foods that he will eat. He can operate the tv, the remotes, and his radio, yet he can’t or won’t operate a gaming system. He wants to, but is determined that someone else does it and he watches. Who can help my son?

He rebels against being made to do new things. He fights against being made to work and attend to tasks. Yet, if he is being asked to do something he likes or gives him what he wants, he will do it. Ask him to get a food item out of the pantry to good his favorite meal, he’ll do it. Ask him to get a cup so that he can have a drink, he’ll do it. Ask him to get an item off of the table you need, because you need it, he won’t. Who can help my son?

Really, is it too much to ask? I want practical help. I want real assistance. I don’t want pie in the sky solutions from quacks that think that because a certain therapy has helped other children, it will help my son. I want a real evaluation from people that have years of experience working one on one with autistic children instead of an evaluation from doctors that only sees a child once. I want a real plan of continued therapy that won’t bankrupt me. Who can help my son?

Am I the only one? Let me here from other parents. Let our voices, our pleas, be heard.

Some Autism Treatments Can do More Harm Than Good

Saturday, December 12, 2009

Autism: Kids put at risk -- latimes.com

Posted using ShareThis

The above link is to a great article about how certain therapies and experimental treatments for autism can actually hurt your child. As a mother of a 10 year old autistic boy, I have tried a lot of different therapies and treatments for my son. I have done research on a lot of different things that have been said to be beneficial for our children.

The question you need to ask yourself when looking at this treatments is "Can it hurt my child?" You also need to ask yourself what scientific data is there to support the treatment you are investigating. Don't take anything at face value. If a doctor sites a scientific research paper, look it up and read the whole thing for yourself. You might find that the doctor is interpreting the results to meet his treatment needs and ignoring the parts of the study that disprove his treatment protocol.

I have tried vitamins, GFCF diet, occupational therapy, speech therapy, physical therapy, probiotics and cod liver oil with my child. I have had good results with all of these to various degrees. Nothing was instant and they did not cure him. I continue to do all of these (except the GFCF diet) because they are safe and have proven to be good for all children. Eating healthy, natural foods and limiting my son's gluten and casein intake have helped improve my son's focus and attention to task. The supplements have improved his immune system and his allegies have improved a great deal. He also isn't sick all the time now.

I have looked into chelatian therapy, hyperberic chamber treatments, and countless other things, only to decide against them because they could be dangerous. Also, the cost of these was too high for my family on a treatment that was not a proven therapy for autism.

Be careful when trying everything under the sun to help your child. I know that it is easy to be swept away with the promises of a cure from the latest treatment craze. Don't bankrupt your family on something that has not been proven and could be dangerous. There is help for your child. It is my opinion that the help comes from time, love and hard work.

Imagine Artist Nintendo DS for Girls by Ubisoft

Tuesday, December 8, 2009


I think that video games can be very helpful when used as a learning tool. Ubisoft sent me one of their new games for girls to review and keep. It is played on the Nintendo DS and is called Imagine Artist. My six year old daughter loves it. She loves to use the Paint program on the computer and couldn’t wait to try this out on the Nintendo when she saw it.

“Key Features:
Draw, Paint, Create – Learn a variety of techniques for drawing, painting and collage through fun mini-games in color-mixing, shading and composition.
Live the Life of an Aspiring Artist – Create beautiful works of art, maintain your studio and fulfill clients’ wishes as you build your reputation and your portfolio.
Share Your Creations – Upload your creations to your own virtual gallery on the Imagine Town website for your friends to see.
Art Made Easy – Simple UI will allow the player to create rich, detailed artwork using a handful of easy-to-use tools and techniques.
DSi-Compatible – Use the Nintendo DSi™ system’s camera to take a photo and incorporate it into your art. “



Imagine Artist is easy to play. It allows you to draw, paint and trace pictures on the screen with the stylus. You can mix paints, pick out different size brushes, and complete assigned art projects. There are even short games that can be played. The Imagine Artist is an educational game that teaches your child, which is the main reason that I like this game. The skills she learns while playing, she can use in creating art in real life.

Ubisoft has several games for girls that you may want to look into. They include:

Imagine Fashion Designer World Tour
Imagine Babyz Fashion
Imagine Sweet 16
Style Lab Makeover
Style Lab Jewelry Design

Ubisoft has plenty of games for boys, too. One of the most recent game to come out is James Cameron’s AVATAR The Game. This game is based on the movie that hit’s the theatre this month. It is appropriate for ages 10 and up.

This game can be used for teaching a child that needs help with developing writing and coloring skills. There are a lot of autistic children that prefer to sit and play with their Nintendo DS, then sitting at a table with a paper and crayon. Although the Imagine Artist is designed and martketed to girls, boys can use it too. This game will help develop necessary skills that they can use in real life.

Reporting for Duty: A day at the White House Book Review

Friday, December 4, 2009


Anyone that knows me, knows that I love to read. I enjoy losing myself in a good book. You can visit new places and learn about all kinds of things when you take time read. I have tried to instill a love for books in my children. We read together everyday. I love to take my kids to the library and let them pick out books to check out.

Any time I am given the opportunity to review a children’s book, I do so. I was offered the opportunity to review and keep the book “Reporting for Duty, A Day at the White House,” written by H.K. Gilbert. This is a story told from the perspective of Barkley, a secret service dog. The dog takes you on a tour of the White House, and provides a unique take on what goes on in this grand house. He also provides bits of historical facts through out the story.

This book is more than a story. It is also a learning tool. It is a coloring and activity book. You can use it to help teach colors to your child. It helps with object recognition, following directions, and reading comprehension and retention.

The pictures in the book are simple drawings. I would have liked to see more detail in the drawings. The story itself is engaging. The author makes learning about the White House fun. I think it is a nice learning tool for teaching children that are visual and hands on learners. If you copy the pages, you can use them over and over again to teach your child.

I am constantly doing the same activity repetitively with my son to improve his fine motor skills. Coloring and writing are very difficult for him. The improvement that I have seen in this area is due to repetitive work. It also helps to present work in different ways. I like that this is an activity book that will work on his coloring skills, while addressing an academic need. I think it is important that he learns about the White House. It is a very important part of all American citizens.

I think this book would make a nice Christmas present for any young child. The MSR price on the back is $9.95. I checked around and you can get it online at Barnes & Noble for $8.95.

Book: Reporting for Duty: A day at the White House
H.K. Gilbert
Author & Illustrator
Price: $9.95
Ages: 5-9 yrs.

Great Homeschooling Moment

Tuesday, November 17, 2009



We have been working hard on independent writing skills. My son has been doing great with hand over hand assistance. I have been pushing him to write independently. He hates it. We do a lot of repetetive work. He has the number one mastered, and almost has the number two.





Today, he was protesting hard against working on the dry erase board, so I decided to give him a little freedom. He drew a dog (funny looking, but definitely a dog). This is the first time he as actually drawn something. My favorite moment is when he wrote out "mom" on the board. All on his own. I did get a picture of it. It is hard to make out, because he tried writing it once, messed up, and tried again almost on top of the first one. If you look closely, you can make out that it is "mom."





Yeah!!!

Christmas with Mattel Toys

Tuesday, November 10, 2009

I am excited to share this review with everyone. Mattel has sent me the following toys to review:

Avatar Vehicle RDA Grinder
Avatar Creatures Dire Horse
Avatar Basic Action Figure Jake Sully
Matchbox Mega Rig Pirate Ship



These are considered boy toys, but I know of at least one little girl that would love them (yes, my daughter). But, I’m not writing this review from her point of interest. This one is about using these toys with my son.

My son doesn’t “play” with toys. He likes them, hoards them, displays them, but doesn’t actually play with them. Now that I am home schooling him, I want to take time each day and try to develop this childhood skill. Easier said than done, right? Well, these toys are inspiring me.

The movie “Avatar” comes out in December. I am looking forward to watching it. I don’t know if it will be appropriate for the kids, so I will arrange for my husband and I to watch it without the kids to determine if they are old enough to watch it. My son might be, but I don’t think my daughter is.




I think these toys will be good for one on one floor play. I love that the Pirate Ship can be put together in about 30 different configurations. No, we have not discovered them all, but we will work on that. This is a great OT/fine motor skill activity. I think it is better for my son to play with this than legos because you can easily see that the pieces are to make a ship. Plus, with my son also having OCD, he just has to have the pieces together.





The Avatar toys are great. I recommend taking these out of the boxes and wrapping them up for Christmas. Your child will appreciate being able to immediately play with them. I also love the I-tags. These are plastic cards that come with the toys and you use them on your computer. You need to have a webcam in order to use these. I was tickled at how my son reacted to the Dire Horse I-tag. When you go onto their website and activate an I-tag, you are able to see a 3-D image of the character on your card on your computer screen. It’s hard to describe. You really need to go onto their website and watch their demo to understand or buy one of the Avatar toys with an I-tag and try it out for yourself.

Appreciating Autism in our Daily Practice

Wednesday, November 4, 2009


written by Sylvia van Meerten
Empower Autism


In my quest to encourage people to simply appreciate their co-workers, friends, and loved ones with autism, I sometimes come across this reaction:

“…but my child doesn’t know how to brush his teeth/take a bath/play independently. If I don’t make him learn, how will he ever be independent?”

I also struggle with this dilemma. When we actively teach skills to people with autism, we are walking a tightrope between creating eventual independence, and squashing someone’s true nature. How far should we push someone to do something new, before we are infringing on their dignity?

Here is what I say: If we can make appreciating the true character of the child central to our daily practice, we will keep the equilibrium we need to make solid moment-to-moment decisions. We can take time to plan stuff for them that they will LOVE, even if it’s not therapeutic. If a child loves bright colors, and could use some practice on personal hygiene skills, we can bring some bright paper or cloth out in the yard, play with it, and leave the skills for another time. We can find ways for her/him to get the sensory feedback they crave. Sometimes, we don’t have to practice anything hard.
The Pressure of the Future:

Many parents of children with autism feel as if the entire burden of their child’s future rests with them, and if they could find the right therapy, the right combination of supplements, the right helper, then their child would be OK. This may or not be true. What is certainly true is that if you and your child don’t share some joyful moments, you will both feel frustrated, and under-appreciated.

When I center some of my daily musings on creating big fun (whatever that means for each child), l feel some weight lift off my shoulders. It’s not like I’m going to just stop teaching kids anything, but I’ve found that creating joy, just for fun’s sake, can center my mind to be able to take on the daily challenge of deciding moment-by-moment which battles to pick, and how to stick with them. Creating eventual independence for a child is truly an act of love, but we don’t have to wait until they are ‘finished learning’ to spend some time enjoying them, enjoying life.

Wordless Wednesday MoonSand

Tuesday, October 6, 2009




It was so hard to get him to play with MoonSand. He has extreme sensory aversion issues with his fingers. After repeatedly introducing this to him and making him "play", he started to like the feel of the moonsand. He now really loves running his fingers through it.
 
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