Showing posts with label intervention. Show all posts
Showing posts with label intervention. Show all posts

A Label Doesn't Change The Child

Friday, April 30, 2010

Jean Myles, www.MommyToTwoBoys.blogspot.com, shares her story with me and my readers via an email interview. Thank you, Jean.

1. When was your three year old diagnosed?


Jaylen was diagnosed at 18 months.


2. Receiving a diagnosis at such a young age is great. Are you receiving Early Intervention services?


At 18 months Jaylen was getting a specialist to the house once a week and we quickly realized it wasn't enough. So he began ABA - DTT five days a week for an hour and a half. Then when he turned 3 he started an integrated PreK program run by special ed certified teachers where he also receives Speech, OT, and PT.


3. If so, can you explain what they are to my readers?


Oops, just did that above :)


4. Would you mind telling my readers a little bit about your child?


Jaylen was completely non verbal until 2, but now has a vast vocabulary, almost above age level. He still has some issues answering questions, and has instant and delayed echolalia at times.

He is very hyperactive, especially when there is a change in routine or he is overstimulated. He used to have very little eye contact and rarely responded to his name, but now does both more often than not.

Jaylen has emotional problems, mostly anxiety and cries often when frustrated or not sure of something. He also has very little empathy and can not "read" people. He used to have up to ten 30 minute or longer tantrums per day, but know has only 1 or 2 a week.

Sensory issues have become worse over time. He likes to squeeze into tight places, use a weighted blanket, and carry heavy objects.

He has difficulty playing with toys appropriately and to this point has no idea how to interact with other children other than to chase them and repeat what they say. However, he is getting good at turn taking games at home.

Jaylen is very bright, some of his teachers have even mentioned the term savant to me. Numbers, shapes, and letters are his favorite thing and he can easily become consumed in any activity involving them.


5. What has been the biggest help for you in obtaining information about autism, therapies and treatments?


The biggest help for us was his first placement. His coordinator, teachers, and therapists at his ABA school were just amazing. They were so involved in Jaylen's development. Since leaving that placement I have found several websites and mom's groups online that really help. A few books have also been helpful in reading about treatments and tips.


6. What has been your family's reaction to your child being diagnosed with autism?


The first day we were told something wrong was very tough to hear. Being a former teacher though, my husband and I both knew something wasn't right. But hearing it from someone else was hard to handle. The label didn't change him though. He is still the same kid, our same little boy, just now we know what is wrong and work hard to help him the best we can.

Calling for Action After the CDC Reports Higher Autism Rates

Tuesday, December 22, 2009

1 in 110 children are diagnosed with autism. That is 1 percent of our children in the United States. “These results indicate an increased prevalence of identified ASDs among U.S. children aged 8 years and underscore the need to regard ASDs as an urgent public health concern. Continued monitoring is needed to document and understand changes over time, including the multiple ascertainment and potential risk factors likely to be contributing. Research is needed to ascertain the factors that put certain persons at risk, and concerted efforts are essential to provide support for persons with ASDs, their families, and communities to improve long-term outcome.” - CDC

Identifying ASD at a young age is important. Early intervention has been proved to benefit our children. Yet, “the average age of diagnosis was 53 months” - CDC. Autism Speaks is pushing for the government to finance efforts to improve this number. I feel that this is extremely important for children that have yet to be diagnosed.






The CDC also acknowledges that community services are important in order to “improve daily functioning and long-term life outcomes.” The Autism Society of America agrees with this, and is calling upon the “government to address the pressing need for community-based services to ensure a better quality of life for people with autism and their families and to increase funding for research into what factors put people at risk and treatments that will mitigate the severest medical symptoms affecting people with this chronic medical condition.” http://www.autism-society.org/site/News2?page=NewsArticle&id=15481&news_iv_ctrl=1882

Both organizations are working towards important goals. Both are doing what they can to get the government to step up and help the children of America. This is no longer a concern for the few. The statistics show that the ASD rates are increasing drastically. It is time that the government started making a real impact in this area.

A child should not have to wait until the age of 4 and 5 for a diagnosis. Appropriate therapy can not be established without an appropriate diagnosis. Parents should not have to fight for a few hours of therapy a week. Children with autism benefit more from intense therapy, like ABA or Floortime, 20 to 25 hours a week, minimum. Most parents are not able to get this for their child. Speech, Occupational and Physical Therapy are important, but they don’t address the communication and social skills issues that are key with most autistic children. Two hours a week of combined therapy in those three areas are just not enough.


It is important that we all demand that our government take action. It is not enough that Autism Speaks and Autism Society of America are rallying their resources for us. We, the people, need to make our voices heard. It is time to call and email your Representatives and demand action. Call and email every level of government and every official that represents your city and your state. It is time that they started giving us some real help.
 
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