A Label Doesn't Change The Child

Jean Myles, www.MommyToTwoBoys.blogspot.com, shares her story with me and my readers via an email interview. Thank you, Jean.

1. When was your three year old diagnosed?


Jaylen was diagnosed at 18 months.


2. Receiving a diagnosis at such a young age is great. Are you receiving Early Intervention services?


At 18 months Jaylen was getting a specialist to the house once a week and we quickly realized it wasn't enough. So he began ABA - DTT five days a week for an hour and a half. Then when he turned 3 he started an integrated PreK program run by special ed certified teachers where he also receives Speech, OT, and PT.


3. If so, can you explain what they are to my readers?


Oops, just did that above :)


4. Would you mind telling my readers a little bit about your child?


Jaylen was completely non verbal until 2, but now has a vast vocabulary, almost above age level. He still has some issues answering questions, and has instant and delayed echolalia at times.

He is very hyperactive, especially when there is a change in routine or he is overstimulated. He used to have very little eye contact and rarely responded to his name, but now does both more often than not.

Jaylen has emotional problems, mostly anxiety and cries often when frustrated or not sure of something. He also has very little empathy and can not "read" people. He used to have up to ten 30 minute or longer tantrums per day, but know has only 1 or 2 a week.

Sensory issues have become worse over time. He likes to squeeze into tight places, use a weighted blanket, and carry heavy objects.

He has difficulty playing with toys appropriately and to this point has no idea how to interact with other children other than to chase them and repeat what they say. However, he is getting good at turn taking games at home.

Jaylen is very bright, some of his teachers have even mentioned the term savant to me. Numbers, shapes, and letters are his favorite thing and he can easily become consumed in any activity involving them.


5. What has been the biggest help for you in obtaining information about autism, therapies and treatments?


The biggest help for us was his first placement. His coordinator, teachers, and therapists at his ABA school were just amazing. They were so involved in Jaylen's development. Since leaving that placement I have found several websites and mom's groups online that really help. A few books have also been helpful in reading about treatments and tips.


6. What has been your family's reaction to your child being diagnosed with autism?


The first day we were told something wrong was very tough to hear. Being a former teacher though, my husband and I both knew something wasn't right. But hearing it from someone else was hard to handle. The label didn't change him though. He is still the same kid, our same little boy, just now we know what is wrong and work hard to help him the best we can.